tag:blogger.com,1999:blog-3255735347955921173.post1930237191266613859..comments2023-12-20T05:43:38.163-05:00Comments on The Princess and The Pump: A Type 1 Diabetes Blog: Broken Trust and the Million Dollar QuestionHallie Addingtonhttp://www.blogger.com/profile/11331775099035220917noreply@blogger.comBlogger38125tag:blogger.com,1999:blog-3255735347955921173.post-44015086976927153772011-07-20T23:38:16.318-04:002011-07-20T23:38:16.318-04:00Thank you for sharing this post and every post on ...Thank you for sharing this post and every post on your blog!!<br /><br />Spiteful...NO WAY!!<br /><br />Drama Queen...Really?<br /><br /><br />I think sharing your story and feelings of the very dramatic events that took place is very brave and very supportive for our whole community to read.<br /><br />I thank everyone who is showing their support to Hallie after the nasty and judgmental anonymous comments. There is no need for that B.S.!! <br /><br />As a mother we do everything in our power to keep our children safe. Our children TRUST in us that we are making the very best decisions on their behalf. That is what being a parent is!! <br /><br />I would NEVER, EVER attach a devise to a child that I did not have 100% trust in!! <br /><br />BUT THAT IS JUST ME!! oh and Hallie.Nicolehttps://www.blogger.com/profile/07233907890324278905noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-61813894954430330572011-07-20T20:39:29.077-04:002011-07-20T20:39:29.077-04:00Dear Anonymous#2, you are also a COWARD. Buck up ...Dear Anonymous#2, you are also a COWARD. Buck up and say what you want to say with your name attached to it. Don't go and attack others if you won't stand behind it. Yes, everyone is entitled you their opinions, even you, but your opinions mean NOTHING if they don't have your name attached to them!Heatherhttps://www.blogger.com/profile/06274178714212627397noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-20645173707461732762011-07-20T20:17:08.698-04:002011-07-20T20:17:08.698-04:00AMEN MISTY!!! I agree that it DOES happen to the w...AMEN MISTY!!! I agree that it DOES happen to the whole family. What was I suppose to do... look at my 7year old son and say "sorry buddy, this happened to you not me sooo your on your own. Good luck!"??? <br /><br />The high cost of supplies doesn't effect the WHOLE family? <br /><br />When he goes low during a family outing and EVERYTHING is put on hold(even for a short time) to take care of him... that doesn't effect the whole family?<br /><br />When he is sick or his numbers have a mind of their own in the middle of the night... is HE the only one effected?<br /><br />Kids on injections that need to stick to a eating schedule... only effects them right?<br /><br />Yes, one day I will be releived of his care, but I WILL always worry, always look out for him and always be there for him. I guess that make me a part of this.<br /><br />Either way, Anon. I suggest you go back and re-read the post because you missed a couple key points... <br /><br />Research? What better "research" can you get than personal exp? This actually happened. It wasn't word of mouth.<br /><br />I love Animas and they have been great with me, as they are with many other customers. BUT they are not above mistakes and unfortunately they dropped the ball here and paid the ultimate price for it. Loosing a customer. <br /><br />I hope they looked at this post. I hope that they fix whatever went wrong so that it doesn't happen again... so that maybe, one day, it won't happen to you.<br /><br />Call me a drama queen too if you like.Lorahttps://www.blogger.com/profile/07192247387107228743noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-10432556070086527262011-07-20T19:26:07.158-04:002011-07-20T19:26:07.158-04:00As for anonymous #1...there are a few things regar...As for anonymous #1...there are a few things regarding your comment that jump out at me!<br /><br />1 - There MAY not have been anything wrong with this pump, but if you (nor Animas) examined it, then I guess we don't know for sure. All technology has the ability to error.<br /><br />2 - You may be jealous that you were not chosen to go to D.C. I am grateful to Hallie for advocating for all Type 1s.<br /><br />3 - I would hope that whichever company works on the arifical pancreas has better customer service than was experienced here.<br /><br />4 - Hallie's intentions here are nothing but good and they certainly are not for personal gain. If you knew her, you would know that everything she does is to ensure the best life possible for Sweets.<br /><br />5 - It is obvious that you are passionate about Animas and that is great for you. However, there are several choices of insulin pumps available to us and what may work for one does not necessarily work for another.<br /><br />And finally, I think Wendy's last comment hit the nail on the head...This is Hallie's decision, not yours! Quit taking it so personally!Mistyhttps://www.blogger.com/profile/17818861980843167968noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-45062121747228837432011-07-20T19:07:31.704-04:002011-07-20T19:07:31.704-04:00Ok, Anonymous #2, "this disease" DID hap...Ok, Anonymous #2, "this disease" DID happen to Hallie. When a child is diagnosed with diabetes it "happens" to the whole family. I want much more for my daughter than for her to be able to walk and play and I'm not afraid to say it with my name attached!Mistyhttps://www.blogger.com/profile/17818861980843167968noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-27472644324811295502011-07-20T16:41:45.491-04:002011-07-20T16:41:45.491-04:00I don't blame for the other anonymous for bein...I don't blame for the other anonymous for being discreet. In this day and age, a person should always remember that what you write on the internet is forever and you other ladies should take note of that.<br /><br />As for Hallie, you are a drama queen. I have read your blog on and off and while I completely understand your concerns, you do go over the top. I have read a lot of blogs over the years and I have never read just a dramatic blog. The other anonymous poster made good points. Just because she doesn't agree with you and points it out doesn't make her bad. <br /><br />You shouldn't bash Animas like that without doing your research. Even if the pump really did malfunction, you have to realize that all equipment can fail no matter how well it is designed. Never rely on a pump. <br /><br />You tend to over dramatize your happenings. Yes, living with Diabeties is very stressful but it also is not the worst. My son has been T1 for 3 years and I'm very happy he can walk and play.<br /><br />Remember, when you write, this disease did not happen to you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-5852106328541030222011-07-12T08:46:58.783-04:002011-07-12T08:46:58.783-04:00Thanks for sharing! Your blog has been a great hel...Thanks for sharing! Your blog has been a great help.. I hope you love your new pump and get that trust back!Mistyhttps://www.blogger.com/profile/14934596244945217384noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-7575696908239912192011-07-12T07:12:43.808-04:002011-07-12T07:12:43.808-04:00Good for you for making the tough choices you need...Good for you for making the tough choices you need to make for your child! I am with you, I will do what ever I think is best for my girls and to heck with everyone else. <br /><br />And to Anonymous....you are clearly a coward. One who has the nerve to leave a comment such as that and not reveal who they are is simply a coward. Grow up and quit hiding.Heatherhttps://www.blogger.com/profile/06274178714212627397noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-71648058734006923052011-07-12T04:42:05.784-04:002011-07-12T04:42:05.784-04:00Hallie-I appreciate your honesty, I have no tie to...Hallie-I appreciate your honesty, I have no tie to any pump company but go with what works for our family at the time. <br />As for the information about the recall I will say that is one reason I stay tied into CWD, they're very quick with reporting all the different recalls on that website. Not saying that Animas shouldn't have sent you letters, I just know that I've been tipped off to several recalls through CWD quicker than through endo office or our manufacturers of any d related product. <br />Take care and don't ever change who you are to make others happy...I appreciate your honesty so much :)Sarahhttps://www.blogger.com/profile/03210820513382353417noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-90659274865510207722011-07-12T01:07:18.469-04:002011-07-12T01:07:18.469-04:00Hallie...Thank you for sharing your experience wit...Hallie...Thank you for sharing your experience with all of us. We do learn from each other. I'm sorry that this happened to you. I've had similar CS problems (not with a pump company...most of mine have been computer issues) and now before I even start a conversation with anyone on the phone I say..."hello...what is your name?" It amazes me how once they know that you know their name...they can't get any nicer! LOL! I just had to contact Animas today and luckily we have never had a problem with Animas. We had an "Alarm Call Service"...freaked me out at first. They told me what the code on the screen meant and all I had to do was reinsert the battery. I admit...I was thinking "thats all it was??" "are you sure??"...you do have to have trust them! If your trust was broken then you have a right to express it and like you said maybe decide to go with someone else. Laura is right Anon. can go suck it! Own up to your words or don't comment at all! I wish you all the best Hallie with your decision.Rondahttps://www.blogger.com/profile/00222133040227585049noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-50412584777724299082011-07-11T23:47:40.932-04:002011-07-11T23:47:40.932-04:00Hallie, thank you for sharing your story. You hav...Hallie, thank you for sharing your story. You have been such a big part of my support system and I know so many others feel the same. <br /><br />These are the lives of our children and I don't think you asked too much of your pump company. A little customer service goes a long way. I'm so sorry this happened to you and Sweets!<br /><br />I'm looking forward to reading tomorrow's post.<br /><br />PS - I think that Anonymous has commented on my blog too. SUCK IT.<br /><br />MWAH!LaLahttps://www.blogger.com/profile/17278430665049354027noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-22285234391031098362011-07-11T20:23:39.127-04:002011-07-11T20:23:39.127-04:00Hallie, Thank you for sharing your experience with...Hallie, Thank you for sharing your experience with your readers. We all learn from one another. Good luck with your decision. I cannot wait to read about it tomorrow. Pumping and brands are a personal choice...you did what was right by your family. I respect that.Anonymoushttps://www.blogger.com/profile/00895126112651188056noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-68436824075989476132011-07-11T19:50:51.353-04:002011-07-11T19:50:51.353-04:00I have to say, this sounds almost exactly like wha...I have to say, this sounds almost exactly like what happened to us when we had an issue with another version of the Animas pump. Customer service was lacking and letter after letter saying they wanted something, but no offer to send us a replacement. I said, no. We paid for this. We are going with another company now - medtronic. When you've lost trust in a product, you have to make the decision to start all over with another company. Whether it was a faulty product - without customer service to make you feel at ease, I'm gone. It's not worth the risk. Good luck whatever decision you make!jcarrierhttps://www.blogger.com/profile/14258680090565835933noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-73046218659398653002011-07-11T19:33:24.273-04:002011-07-11T19:33:24.273-04:00Hey Anonymous, I think I know who you are and migh...Hey Anonymous, I think I know who you are and might I suggest a name next time, so as to reveal yourself?! Don't hide, you feel the way you feel, get it out, but at least have the guts to fess up and state your name. <br /><br />We each have our own path to travel with the D. I fully respect Hallie's opinions, thoughts and decisions. As a fellow D-blogger, I am not worried in the slightest about the reputation of Big Pharma. Hallie has every right to speak her mind, what she thinks and feels. I think Big Pharma has bigger fish to fry if you know what I am saying.<br /><br />Hallie you keep on keepin on. I can see how your trust is diminished within the company. I look forward to reading about your resolution, for there but for the grace of God go I.Pennyhttps://www.blogger.com/profile/11137611120689810820noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-91042988520401397822011-07-11T18:50:47.168-04:002011-07-11T18:50:47.168-04:00Hallie, I am so sorry for this persons comments on...Hallie, I am so sorry for this persons comments on your blog. I am sorry this company has disapointed you so badly. The number one reason anyone chooses a company is the product number 2 is the services. CLEARLY they have failed on both accounts!Shannon@ The New Normal Lifehttps://www.blogger.com/profile/01279602870904163459noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-88976922382224152582011-07-11T18:49:24.772-04:002011-07-11T18:49:24.772-04:00Dear Anon, I can’t believe you would be so rude as...Dear Anon, I can’t believe you would be so rude as to turn this tragic situation into a personal attack. You clearly must not be a D mom who has to choose day in and day out life decisions to keep your child alive. If you were you would recognize this clearly as a helpful blog to all of us who are in difficult situations. Hallie, has been a supporter of all of us over the years. Her advice, tools, experiences have gone miles to helping me care for my child. You on the other hand has give the DOC NOTHING expect a negative opinion and been very rude. If you are a current member of the DOC and someone we all follow then you should know there are ways to get your point across and things you can say without being so mean. In regards to not "supporting" the company that the JDRF chooses to use, Guess what. The staff at said company should have been more supportive to a parent who has trusted them to care for their child. Especially if they are named as the JDRF chosen company. If you read her blog post more clear you will see that she was supposed to wait for the cartridges to come back before sending hers in. They NEVER sent her the new ones and she was being pestered to send in the old ones. I find your entire post in bad taste, bad form and just plain mean. If you choose to state your opinion please use your own blog to do so and leave the people who are supportive and friendly alone.Shannon@ The New Normal Lifehttps://www.blogger.com/profile/01279602870904163459noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-73110275324819097042011-07-11T18:41:47.837-04:002011-07-11T18:41:47.837-04:00I agree - you received some crappy customer servic...I agree - you received some crappy customer service! I'd be very worried if the same thing had happened to us, for sure. We did receive info on the recall, both via email and a letter. I checked our lots, but I certainly did wonder how they could be sure it was JUST those lots. You know? <br /><br />In any case, I'm looking forward to reading about your new adventures in pumping!<br /><br />As far as Anon...c'mon really? Are you the same Anon that visits all the D-bloggers from time to time, instigating drama while hiding behind "anonymous?" That's great you have an opinion, but own it and don't attack Hallie for doing what is best for her daughter.Stephaniehttps://www.blogger.com/profile/05703099150939801754noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-65783562432869996702011-07-11T18:40:13.274-04:002011-07-11T18:40:13.274-04:00hallie, i am SO SORRY! :(
trust is everything. th...hallie, i am SO SORRY! :(<br /><br />trust is everything. the only pumps i've ever used are medtronic. if you have any questions about medtronic, i'd be happy to answer them for you.<br /><br />hugs!Jesshttps://www.blogger.com/profile/12389672426152872555noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-37832603410151843072011-07-11T18:24:47.413-04:002011-07-11T18:24:47.413-04:00The situation was difficult enough, but adding ins...The situation was difficult enough, but adding insult to injury with crappy customer service and out and out lies is just too much!<br />I'm sure it was a tough decision that took lots and lots of thoughts and prayers. <br />Praying that this new chapter in Sweet's D-book brings peace and trust!Denise aka Mom of Beanhttps://www.blogger.com/profile/05726979027850619807noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-2542532335179229172011-07-11T18:22:48.533-04:002011-07-11T18:22:48.533-04:00Thanks for sharing your experience. I have to say ...Thanks for sharing your experience. I have to say that we have not had anything but great experiences working with Animas over the last 2 ½ years. We have had the pump and the remote changed out a few times and have been very happy with them as a company. <br /><br />I know you are making the decision for Sweetpea the best you can and that is all anyone can expect. I am sure it was a difficult choice to switch and I want to wish you the best of luck on your new pumping venture!<br /><br /><br />And I agree with Wendy, a cure would be nice. :)Tracyhttps://www.blogger.com/profile/14099684353285067828noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-4697193655738492562011-07-11T18:10:51.363-04:002011-07-11T18:10:51.363-04:00Anon, maybe you should stop taking it Hallie's...Anon, maybe you should stop taking it Hallie's decision so personally? It's her JOB to make hard decisions when it comes to her daughter's well being. <br /><br />She's a top notch JDRF advocate, and I doubt that will waiver, regardless of which pump her daughter uses. <br /><br />In the end, we really just need a cure.Anonymoushttps://www.blogger.com/profile/16704298016041843194noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-39021523992672106592011-07-11T17:39:13.129-04:002011-07-11T17:39:13.129-04:00Anonymous, I can't BELIEVE that you would dare...Anonymous, I can't BELIEVE that you would dare to post something SO offensive ANYWHERE. Hallie is blogging with honesty, and a blog is a place for her to share her feelings openly. She shouldn't have to worry about people like YOU coming around and accusing her of horrible things that aren't even true!<br /><br />Hallie, I support your decision, whatever it may be. Any company (but especially medical companies) needs to listen to their customers and give adequate customer suppport, even if they don't think they're at fault. You need to be able to trust that they will replace your cartidges if necessary and give you the confidence in her supplies that you need. Wherever you go, I hope it works out well. So excited for tomorrow to hear what it will be!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-34432819207568685462011-07-11T14:50:21.094-04:002011-07-11T14:50:21.094-04:00WOW Anonymous! Who are you that you would make suc...WOW Anonymous! Who are you that you would make such strong accusations and not be willing to post your own name? <br /><br />I have found Hallie's documenting of her experience to be very fair. Having worked in medical device for almost 10 years, I know it is very difficult to know why a product fails. But especially for a life sustaining product the safest approach for the company would be to assume the product is at fault and to support the customer through a terrible experience. Had Animas been more supportive in taking the pump and cartridges back immediately for investigation, I would wonder if this post had even been written. <br /><br />And finally, I don' t believe Hallie writes her blog to gain a relationship (financial or otherwise) with BigPharma or Med Device companies. She writes to support her daughter, her husband and other members of the DOC. I'm pretty sure her blog will remain the same whether she is getting kudos from JDRF, Animas, or anyone else. Because she has a whole army of D mommas behind her and WE are the important ones to have a relationship with.Becky Vhttps://www.blogger.com/profile/10440780887445338114noreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-1102184458521713632011-07-11T13:57:17.462-04:002011-07-11T13:57:17.462-04:00I don't ever get involved in confrontational c...I don't ever get involved in confrontational comments left by others but found myself unable to let this one go. The above post is a very strong comment to leave anonymously. Each is entitled to their own opinion but why hide behind anonymity if you have such a strong one? The import of your words are lost if you cannot even put your name to them.<br /><br />Hailie shares her truth and honesty with her name attached to it. That takes integrity.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3255735347955921173.post-55579080581418447132011-07-11T13:14:23.116-04:002011-07-11T13:14:23.116-04:00I am sorry you felt you were treated badly... that...I am sorry you felt you were treated badly... that never feels good, especially when it comes to such life and death situations with our kids. I hope you can find the trust again that your little cutie will be taken care of. And thank you for your honesty and sharing your experience. Sharing the good WITH the bad helps keep these very important companies in check and honest. The good companies should WANT to hear about things when they go badly so they can try to improve their processes and procedures.<br /><br />Fortunatly, we too have had nothing but good experiences with Animas. We were included in the recalls earlier this year as we had some of the affected lots. Both my husband and I got emails, followed by letters in the mail, and were promptly sent new cartridges without ever having to ask for anything. I also read about it on fb, blogs, etc so felt well informed. Your experience does sound eerily similiar to what they described in the recalls and I hope you did get to finally send back your cartridges and Animas got around to investigating them. <br /><br />Good luck!Lisahttps://www.blogger.com/profile/02733080389249353415noreply@blogger.com