Life for a Child

Tuesday, December 4, 2012

Swimming Through Jello

That's how I've been feeling.

Like I'm swimming through jello.

Stuck.  Unable to move.  Every slight movement a big struggle.  One step forward, two steps back.

I haven't blogged since OCTOBER?!?  For reals?!?

Well, I guess that sounds about right.  Stuck.

A lot has happened since I last wrote.  There's probably no way I can fill you in on all of it.  Here's a short list:

- Jason went to the cardiologist who said everything was fine and wanted to schedule his surgery for the following week.  Well, the next day he started having chest pains.  Of course he didn't tell me this until 5pm.  He ended up going to the ER just to be safe.  The EKG they did showed changes and so faster than you can say "double bacon cheeseburger" he was having another surgery and they were putting in the other stent.  It was so fast, I didn't even get back to the hospital before he went in.  OF COURSE, Sweetpea's pod had blood in the cannula window - first time EVER.  So I had to do a pod change before I could go.  He was in the hospital a couple of days and then went back home.  He is doing quite well now.  He's going to rehab and behaving himself quite nicely - although he still yells at the TV much to Sweetpea's dismay.

- Sweetpea's school nurse (you know, the AMAZING one) LEFT.  Yes, I'm serious.  She got promoted (I guess that happens when you're awesome).  She is still around but now she's the head nurse and Sweetpea's school got a new nurse.  I really like the new nurse (that's what Sweets called her for WEEKS - "New Nurse").  She seems to get the seriousness of diabetes (which I'm glad since there are SIX girls in her school).  She is trying really hard to learn everything.  I'm sure it's overwhelming learning all about diabetes and how to treat six different kids.  There was so much going on that I didn't really freak out about it.  We've just rolled with it.

-  Sweetpea is LOVING first grade and having a T1 buddy in her class.  She is very happy and adjusting quite well to being away from Mom.  And you know what?  Mom is adjusting quite well to being away from Sweets!

-  School has been a challenge with blood sugar and the pile up of activity that occurs in the afternoons.  She can drop 50-100 points in 15 minutes.  We've made some headway and feel like we are finally getting somewhere with this.  Blood sugars have been running LOW.

-  We got the new Dexcom G4.  WOO HOO!  I will DEFINITELY post more on this later.  In case you don't know, the Dexcom is not approved for pediatric use although it IS in human trials.  We were lucky enough to get ours RIGHT (like 2 weeks) before the labeling changed.  So, our hospital will still let us keep it.  They will not, however, write new scripts for it.  (Some endo's have no problem prescribing it.  You just have to check with your doc!)  When we went to order the G4, our insurance said Great!  Go right ahead.  We will cover it 100%!  Then Dexcom told us that they are no longer working with our insurance and so we had to go through a third party supplier.  Whatever.  BUT... the new supplier needed a NEW letter of medical necessity.  *sigh*  Why does it always have to be so difficult?  We were afraid, of course, that the doc wouldn't give us a new letter.  BUT... she did.  It took a while.  But we got it.  And we love it!

- Halloween.  Trick or Treating.  In the sleet.  With your Type 1.  Fun times. Enough said!  Truly- we love Halloween and had a great time!  I swagged some monster marshmallows at her school party (I'm not kidding.  These things were ginormous.) and we rocked it!

- Sweets has NO TEETH.  She has lost FOUR in the past few weeks.  Can you guess what she wants for Christmas?!?

- We participated in our fourth Walk to Cure Diabetes!  We raised a little over $11,000 this year for a four year total of over $50,000!

-Other things of possible interest that I'm hoping to blog about soon: falling off the beam at gymnastics (again), awesome gymnastics teacher, the return of Mr. Funky (our elf on a shelf), really enjoying having a T1 in my class, hanging with D friends, World Diabetes Day, Instagram, some awesome giveaways coming soon and more.



So there you have it.  The highlights (or low lights) of the past two months.

I miss blogging.  I miss YOU!

It's just this jello keeps me stuck.  And before I know it one day has become the next and the next and I'm exhausted and working all the time and... here we are!

BUT

It's time to turn up the heat.

Time to melt the jello and get on with it!


Photobucket

7 comments:

  1. We missed you!!
    Girl, JELLO workouts can kick your butt ( I always say high blood sugars make me feel like I'm walking through JELLO) not to mention the fact that JELLO workouts zap all your energy!!
    I'm glad you are turning the heat up high - FLAME ON my friend!!
    Xoxo

    ReplyDelete
  2. Yes, we HAVE missed you! So glad to hear J is doing well and Sweets is loving school with a very special buddy! Makes a Moms life alot easier doesnt it!!?? ((HUGS))

    ReplyDelete
  3. So glad to read your blog again! We started the new dexcom too, never had one before. Big help especially being she is a hormonal mess with puberty. Goes from 32 to 500 with no pattern. She keeps muting the dexcom without telling me or her teachers though. I'll have to come up with a reward system to get her to stop. I'm amazed how much you raised, wow that's fantastic.
    I hope you get a chance to blog again someday I really enjoy it.

    ReplyDelete
  4. Thanks for blogging again. It's always a pleasure reading your blog. My daughter started the new dexcom too same thing third party new papers needed. It's a big help would be even better if I could get her to stop muting it without telling me or her teachers though. She starting puberty and her bg are wildly uncontrolled, I feel beaten down and frustrated. There's no pattern to the crazy of it but she went from .30 basal to .75 in a month! I'm glad your daughter has a buddy in her class must be great!

    ReplyDelete
  5. ...and she's back! :) missing your blogs, but since I'm finally on FB, I've still felt connected.
    looking forward to hearing your thoughts on the G4. ours is 'processing' and I'm chomping at the bit until it gets here, living vicariously through those who have it!!

    ReplyDelete
  6. You've certainly had a LOT going on!

    And you know what I love about blogging? We get to set our own schedules! Post when you can, and we'll all be here. :-)

    ReplyDelete
  7. Hay, It's always a heart breaking news when listen some child is having diabetes. Well you are doing good for your daughter. Hoping good life for both of you.

    ReplyDelete

Thanks for commenting! Comments = Love

LinkWithin

Related Posts with Thumbnails