Friday, January 4, 2013
The Bag Backfire
Nothing is ever simple when living with diabetes, is it?
Raising a child with diabetes includes a whole new set of things you've got be ready for. In addition to all the regular growing up and gaining independence stuff there's all this diabetes stuff too!
Because Sweets was diagnosed a few short weeks after turning three, most of her care to this point has been done by J and I. A three year old can't really read carb counts. But all that is starting to change and it's adding a whole new dimension to our lives!
And, of course, it's never quite as simple as we hope it would be to keep our kids safe at school.
This is where my story begins...
After the tragic events in Connecticut, J and I decided that we were being too lax in our preparations for the "what if". Last year Sweet carried (her teachers carried) a bag with her whenever she left the classroom that contained a fact sheet, meter, smarties, juice and glucagon. We felt it was important that she have these things with her at all times. You never know what's going to happen and should there be a lockdown and she couldn't get to her kit she would at least have the supplies she needed to stay safe.
This year, at her new school, we decided to just leave the bag in her classroom. The other classrooms in the school that she visits have kits that contain things to treat a low. Remember, she's not the only one now. Now she's one of EIGHT. (and yes, unfortunately that number just went up) The thing is- those kits don't have meters. They don't have glucagon. There isn't one outside.
We were ok with that. Before.
Now, I just can't shake the feeling that I'm being irresponsible if I don't insist she have access to her supplies at all times. The probablility of something happening is slim. But what if??? We all know that things happen. And they happen to us. I would never forgive myself if she needed her supplies and did not have them.
So, we decided that from now on she will carry her bag with her when she leaves the room. We got her super cute sparkly Hello Kitty purse to keep her stuff in.
Problem solved, right?
One little problem. There is now a state law that says that glucagon can not be carried by a student or a teacher and is only allowed to administered by a trained person.
I won't go into that whole thing. Long story short is that if we have doctors orders she is allowed to carry the glucagon in her emergency bag. Would someone actually use it? Maybe not. But at least it's there.
So now the problem is solved, right?
Nope. Not yet.
When I picked Sweets up from school yesterday, I asked her how her day was and the bag was. She said it was fine and she liked it.
Then she told me that she felt low during lunch. So she decided to test herself. Except she's too chicken to push the lancet and so her T1 buddy in her class did that part. But the meter didn't work right. So she just kept eating.
So we had a little talk about how that bag is for an EMERGENCY. And that if she feels low, she needs to tell an adult before she does anything else.
She said, "Why? ________ (T1 buddy) and I can handle it."
I told her that I was glad that she was taking responsibility and it was a good thing to test but that at school she really has to get an adult to help her. And besides, does she know what numbers are high and low?
"Not exactly. But _____ (T1 buddy) does."
Great. Looks like we need to work on the high/low thing! We also had a discussion about how they are not allowed to do that at school without an adult helping.
I thought she got it.
Problem solved! Right??
Oh, no. Not so fast.
I'm not even kidding you ... as I am WRITING THIS BLOG I got an email from the nurse saying that Sweets felt low in class this morning and had half a juice box on her own.
ARE YOU KIDDING ME?!?
WHAT am I going to DO with this kid?!?
It seems we need to have another discussion. And if she can't handle the bag....
I know that she thinks she's big stuff with her own bag. She's proud of herself for being able to read the carb counts on the labels and bolusing herself (with someone watching). I'm GLAD that she is starting to take some initiative in her care. And that's she is paying attention to her body.
That can't happen at school.
I don't want to crush her independence. I want her to continue to develop these skills. But I also need her to follow directions!!
Looks like we are going to be having another little talk tonight about the bag and when she is supposed to use it. Maybe it's not the best idea after all. We will see... I think she's responsible enough to handle this.
She just has to get the rules straight. She doesn't like to break the rules.
The thing is - sometimes she thinks SHE knows best!
** Thanks to Misty for this blog name! It was her idea!
** If you have any suggestions or ideas for me - leave me a comment! I appreciate all the help I can get! This is brand new territory for us!
at 2:04 PM