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Sunday, May 22, 2011

Soooo.... D blog week! I still have 2 posts to do! (And I'm still blaming Blogger for being so late.)

The first post is supposed to be 10 things I hate about diabetes. My first thought was that thinking of 10 things would be easy peasy lemon squeezy. But as I started to really THINK about it, I realized that I've already written on this topic.

There are a blue million things that I don't like about diabetes.

And I believe that it's ok to be honest about that. I think it's ok to FEEL what you feel. And if you are hating D, go on and hate it. It's not always a bed of roses. That's for sure, huh?

Wait... No, it really IS a bed of roses. There are some weeds. And there are some nasty thorns that can get you when you least expect it. Or even when you DO expect it. Piercing flesh and making you bleed.

In my opinion, it's ok to hate that part. It's ok to get angry or mad or scared or sad or whatever. You don't have to pretend that part doesn't exist.

But don't let those thorns keep you from smelling the roses. Don't forget to see the beauty that is also there.

Look at the little person you love (or big person, or yourself). See the beauty in that life. See the strength.

So, here's the 10 (plus... way, way plus) things I hate about diabetes. And why they make me one lucky Mama!

Do you know how lucky you are?

If you've never had to pierce your child's flesh.

If you've never entered your child's bedroom with baited breath, waiting to know they are alive before you exhale.

If you have - but know that that possibility is remote and highly unlikely.

If you don't see your child's blood every single day.

If you can feed your child without thinking twice. 

If you don't have to count every morsel that goes into their mouths.

If you can send your child to school without any extra care, notification, preparation.

If you can let your child go off to play at a friends house with any added stress or explanation or directions.

If you can sleep for more than 3 hours at a time.

If the medicine cabinet on your bathroom is still functioning and has just about enough room.

If you don't have a sharps container in your house.

If your pharmacy does not know you well enough to call you by first name.

If you don't have to BEG your insurance company to give you
enough supplies to keep your child healthy.

If you don't visit a hospital every 3 months.

If you don't worry when your child falls down when playing or falls asleep in the car that he or she is actually passed out from a hypoglycemic episode.

If you don't carry around an enormous amount of medical supplies every where you go.

If you don't know what normal blood sugar is.

If your life has never been divided into before and after.

If you never spent a week in the hospital learning to keep your child alive.

If you don't fear a simple cold or a 24 hour stomach bug.  If you'd never even imagine that it could land you in the ER.

If you don't have to FIGHT so that your child can be like everyone else.

If you don't know what insulin smells like.

If you don't know how to fill a syringe. 

If you don't juggle carb counts, carb rations, ISF's, and IOB information at the same time.

If you have no idea what any of that means.

If you've never had to hold your child down to give her a shot.  Multiple times a day.  Every day.

If you've never listened to your child cry and scream, "NO!  Mommy, Don't hurt me."

If you've never had to answer your child when she asked, "Why me?  Why am I different?  Will it ever go away?"

If you don't stare death in the face every day.

If you don't really know anything about Type 1 diabetes.

Do you know how lucky you are?  Do you know how much you take for granted every day?  Do you know how much easier life is without diabetes?

Do you?

Before April 27, 2009 - I didn't.  I had no idea.  I had no idea how lucky I was. 

I had no idea how easy meal times were.  I had no idea how simple it was to get my child a glass of juice or milk.  I had no idea what a "bad cold" or "illness" was REALLY like.  I didn't know anything about carbs.  Or insurance.  Or needles.  Playing, dancing, going to school... it was all so easy. 

I had no idea.  I took so much for granted.

But now....

Now I'm on the other side. 

And do you know how lucky I am?

I know how to fill a syringe.

I know how to give a shot and insert a cannula.

I know how to count carbs and calculate insulin doses. 

I have insulin to give my child.

I have a pharmacy staff that is caring and kind.

I have a top rate children's hospital to treat my child.

I have a closer family.

I have deeper relationships.

I have enough supplies to keep my child alive and healthy.

I have been humbled by something bigger than me.

I have a school and teachers who love my child and care for her like she's their own.

I have learned to ask for help.

I have learned that I can't do it all.

I have learned to cherish the good days.

I have learned to enjoy the moment.

I have learned how fragile life is.

I have learned how strong I really am.

There are days that I hate diabetes.  I hate what it does to my child and me and my family.  I hate what it means.  I hate all that we have to do to just to appear normal and live a normal life.  I hate all that it takes away.  I hate all that it demands of us.

There are days.... days when I wish it had never entered our lives.  Days when I am so incredibly jealous of those whose lives are so much easier.  Of those who don't deal with diabetes.  Of those who don't worry daily about their child's mortality.

And when I have one of those days.....  I try to think of lucky I am.  Of all the good D has brought into our lives. 

Because I can't make it go away. 

All I can do is look for the blessings.  And feel lucky.

- originally posted 12/8/2010



  1. Thank you for that post and its so true!

  2. I thought this was a great post when you first published it, and I still think so. :)

    Another reason why we are lucky: the DOC. We have a vibrant, strong, supportive network of incredible people who are always there for us and who just plain get it.

  3. We truly are the lucky ones! We are so lucky to have the ability to keep our children happy and healthy and while we do have to put way more effort into it it's so worth it!

  4. Awesomeness. :)
    It took me some time to get to the stage where I was able to say "I feel lucky", but I finally got there and it's a much more peaceful place. Thanks for putting it so nicely.

  5. I still HEART this post, I love the care bear pic, too. I always appreciate your posts and this one is an example of the ones i usually refer friends whom want to learn more to read about - you have a way with words :)

  6. So incredibly awesomely put, Hallie!
    We are lucky, indeed, whether we can always see it or not.
    Yes, there are lots and lots of things to detest about this disease and rightfully so. But on the flip side, it brought all of us together and that is an amazingly great thing!!

  7. Thanks for this wonderful post.
    Love and prayers.

  8. I agree it's okay to acknowledge these feeling, but not to let them consume you. I think often about how much easier life would be without D, but I too think of our many fortunes.

  9. Wow, that's amazing!
    Thank you for putting such a great spin on things, it's far too easy to get bogged down in the negatives. I guess we really are all very lucky :)

  10. My heart feels like it is being squeezed and I have tears in my eyes. You have expressed my own feelings so well. I hate diabetes, but I am grateful there are others out there (like you) who get it...who understand...who know what it feels like. Thank you for being our voice. (Susan K.)

  11. What a great web log. I spend hours on the net reading blogs, about tons of various subjects. I have to first of all give praise to whoever created your theme and second of all to you for writing what i can only describe as an fabulous article. I honestly believe there is a skill to writing articles that only very few posses and honestly you got it. The combining of demonstrative and upper-class content is by all odds super rare with the astronomic amount of blogs on the cyberspace.

  12. I still love this post! You NAILED it Hallie. Thank you, as always, for putting words to what so many of us are feeling. You have a gift my friend.

  13. Great post, Hallie : )
    Anonymous is much more specific, but I love your *heart*. Hugs, Holly

  14. My daughter's DX was 12/20/ we anxiously await her pump start tomorrow we learned that another schoolmate--2 grades behind Kate--had her DX today. So painful to watch another family overwhelmed by this disease--but Kate told Ashlyn that she will be Ashlyn's diabetes angel to help her through this...pretty remarkable for an 11 year old. And the lessons we've learned and the processes in place in the school because of Kate will help Ash and her family.

  15. Thank you for taking the time to write... I love reading your blog. Our daughter will be 7 on June 6th. She has had Type 1 for 2 years now. It is very tough, but we are also thankful... for SO much :)! Blessings, Lori


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